Where Rare Blooms Together
Hi and welcome to One in a Daisy — I’m Danielle, and I’m so glad you’re here.
One in a Daisy was born from the rarest kind of love — the kind that grows in unexpected places and blooms through challenges. My daughter Daisy is 2 years old and has been diagnosed with Shashi-Pena Syndrome — a condition so rare, we’d never heard of it. Neither had the doctors supporting us.
Her diagnosis opened my world to some truly wonderful people in a community I didn’t even know existed.
In those early days, I just wanted to talk to someone who understood what I was feeling — not someone who told me, “she’ll get there.” I couldn’t find stories like ours… not until we had Daisy’s diagnosis. Even then, while the support we received was incredible, there was still so little out there. So I decided to do what I could to raise awareness — and to share our story.
Whether you’re a fellow rare parent, a curious soul, or someone who stumbled in while Googling “how to make a cup of tea strong enough to handle a Monday” — you are welcome here.
Because rare doesn’t mean alone.
With love,
Danielle
🌱 Our Journey in 5 Milestones
1. The Beginning
Daisy was born in April 2023 — small, beautiful, and full of mystery.
2. The Questions
There were early signs that things weren’t typical. Appointments multiplied, and then out of the blue in June 2024, Daisy was hospitalised with pneumonia and a collapsed lung. Tests began, but answers felt out of reach.
3. The Diagnosis
At two years old, Daisy was diagnosed with Shashi-Pena Syndrome.
4. The Community
We discovered a small but mighty community of families who understood our world. We are not alone.
5. The Bloom
One in a Daisy was born — a blog to raise awareness, share stories, and remind others that even in the rarest of gardens, the most beautiful things bloom.